Tag: IBD

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Prednisone

I wanted to use this site to talk about out lives and the changes we have gone through.  One of those changes unfortunately was working two jobs at once.  Two FULL TIME jobs at once.  I just haven’t had much time or energy to be quite frank.

In October, Jason got incredibly ill due to the Ulcerative Colitis.  At midnight on October 17th, he started feeling sick and by around 6 am the next morning he had gone to the bathroom 16 times and was bleeding.  He was so exhausted, so after getting him back into bed and promising I wouldn’t call his doctor…I called his doctor!  That day the doctor explained that it was either get it under control quickly or Jason would have to be admitted to the hospital.

So, that day, Jason started a very high dose of Prednisone.

Side effects of Prednisone include:

  • Confusion
  • Weight Gain
  • Excitement
  • Acne
  • Nausea
  • Headaches
  • and more serious side effects like Adrenal Fatigue

But within just a few days Jason was already seeing an improvement.  We are into January and it seems as though he is making a turn for the better.  I think both of us are scared because every other week his dose of Prednisone is lowered, but at least right now he can eat!!

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Starting Point

My name is Jess.  The reason for this site was to give my husband and I a place to write. Just random stuff. It doesn’t have to be important, ground breaking or stuff we expected to be read by hoards of Internet users.

It is just a place for random.

Random may come in the ways of posting random pictures, talking about food, sharing a recipe and I think mostly for me, using it as a place to vent?  Maybe that isn’t quite the right word. A place for me to express my thoughts when I need to write them out.

Like tonight for instance. I’m in love with my husband. More than anything, and life has been pretty scary with him recently. In the last six months everything has been turned upside down. We have almost normal days and then days or just hours where all hell breaks loose in our house because of disease. There will be posts about that as well. Jason has thyroid cancer and ulcerative colitis.

People hear ulcerative colitis and think “oh, so he uses the bathroom a lot”.  It’s okay, it’s what I thought also. It actually attacks his skin and can lead to very serious skin infections. It attacks his joints and on bad days we’ve found he can barely walk. The medicines are scary, have some rough side effects and lead me to worry about his future with cancer. It makes him not just exhausted, but fatigued. I love days where he can dance through the kitchen, but so often right now he’s just too tired.

And as I’m new to these diseases, I’m exhausted also. I’ve taken worrying about my husband to a level perhaps not seen on earth before.

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The last couple of days were almost okay but I think he pushed himself too far the last couple of days. I hope to eventually add some of my anxiety homework into these posts, but for now I’m going to sleep and we are going to take tomorrow one hour at a time